In 2004/2005 I had a time of immense stress,upset and ill health.
I was pregnant with my second child,My father became ill and was later diagnosed with a brain tumour and shortly after the birth of my Daughter in the August I began to suffer the most horrendous pain which was later diagnosed as Gall Stones.
So I had a dying father ,ill health,and a newborn baby who was ill herself.
In January 2005 my father passed away. It had been 6 months since he became ill.
My Daughter was diagnosed with reflux,after continually dropping weight and suspected Cystic Fibrosis
I had an operation to remove my Gall Bladder around June time.
After that my body stopped working properly.
The slightest thing seemed to wear me out,I remember walking to the post office 5 minutes away then coming home and having to sleep for two hours because it had exhausted me so much.
I was so tired,but some nights I couldn’t sleep and any sleep I did have was not refreshing.
I had headaches,muscle aches,clicky joints,palpitations,stomach cramps,dizzy spells,difficulty concentrating,panic attacks,sinus problems,sometimes I mispronounced words or struggled to find the right words to use. I just felt so ill!
The doctors were not much help and were quick to assume that I had depression,even though I told them I hadn’t.
In 2011 I suffered I had two ocular migraines in a week-it was scary and I honestly thought I was having a stroke.
In late 2011 I was diagnosed with Gastro Oesophageal Reflux Disease and given medication to control it.
In early 2012 things seemed to come to a head,I was sat at home one evening and I experienced two sharp shooting pains down my left arm then immediately after pins and needles. They did not go away so after an hour my Husband took me to the local minor injury unit. The GP there examined me and noticed I could not keep my arm up,also my blood pressure was extremely high. I was sent to the nearest hospital and spent most of the night in A&E wired up to machines. I was put on to the ward around 3am and then discharged the next day with a verdict of migraine.
The feeling in my arm to two days to return and it still feels weak now.
It was at this point,and if I’m honest out of desperation (and to much time on my hands as I was signed off work for a month) that I did what everyone tells you not to and Googled my symptoms.
I came across a page about ME/CFS and it was like reading about myself.
Armed with this new information I saw my GP again and suggested it to him,he agreed that it did sound like CFS and he was happy to refer me to my local Hospital where they have a speciality clinic for it.
I had to have blood tests and an MRI to rule out any underlying conditions.
But finally I had a name to put to the thing that had been blighting my life for so many years.
I have had to reduce my hours at work (on the advice of the Doctors),I’ve had more energy but we’ve had less money. My health is more important though and if I have a bad night I know I can rest the next day while the girls are at school.
I have good days and bad days,sometimes I have a month when I feel great then I wake up one day feeling as though I’ve been run over and it starts again. I’ve got to know my limits. I can still go walking (something which we enjoy as a family) but I take it steady and know I will probably pay for it the next day.
I count myself lucky,some CFS sufferers are so ill they are unable to work or even get out of bed and may have to use a wheelchair.
I have to go to the clinic 6 monthly which is good as they can keep a check on how I’m doing.
I will not get better,and there is no cure.
It’s hard as there is no visible illness and I feel as though people just think I’m lazy or it’s all in my head. I’d like them to try a week in my shoes!
It’s hard but I stay strong,my kids and family keep me going and one day I hope to beat it completely.